Spasmodic Dysphonia (laryngeal dystonia) and Voice Changes

27 Feb Spasmodic Dysphonia (laryngeal dystonia) and Voice Changes

The University of Washington SPEAC Lab is inviting individuals who have been diagnosed with spasmodic dysphonia (also known as laryngeal dystonia) to answer survey questions about their communication experiences. We ask participants to nominate at least one family member, friend, or coworker to also answer survey questions about their own experiences. Your participation will help healthcare providers support people with spasmodic dysphonia (laryngeal dystonia) and the important people in their lives to stay connected through communication. This is an online survey study that will take about 30-45 minutes (we can mail a paper survey instead if you prefer). People with spasmodic dysphonia (laryngeal dystonia) and their family / friends will complete SEPARATE surveys, and data are not shared between participants. This study is open to anyone in the U.S.

Each participant will be mailed a $25 check upon survey completion.

Note: This study is not for people with other types of dystonia such as oromandibular, cervical, or other types. This is only for people who have been diagnosed by an ear, nose, and throat physician (otolaryngologist) with spasmodic dysphonia (laryngeal dystonia).

To participate, click ‘Begin Study’ at: https://sites.uw.edu/speaclab/staying-connected-study/spasmodic-dysphonia/

The person with spasmodic dysphonia (laryngeal dystonia) needs to start first and then nominate their family member / friend /coworker to participate.

For questions, please contact: speaclab@uw.edu or 206-221-3563

Thank you for your help! We appreciate your time helping to shape future care for people with spasmodic dysphonia (laryngeal dystonia) and their loved ones.

Participant Eligibility

Has been diagnosed with spasmodic dysphonia (laryngeal dystonia) by an ear, nose, and throat physician
Lives in the US
Able to complete questionnaires about their experiences communicating with other people
Able to complete questionnaires in English
Has at least 1 family member, friend, or coworker who agrees to also participate in the study to complete their own questionnaires
Lives in the community (not a nursing home)
Age 18 years or older

Contact

Carolyn Baylor
(206) 221-3563