21 May A Relationship-Based Framework for Clinical Research: Ethical Considerations Beyond Informed Consent
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Description
In this session, attendees will learn about ethical benchmarks for clinical research and practice applying them to real-life case examples, with a focus on the role of researcher-participant interactions.
Learning Objectives
By the end of this session, attendees will be able to:
- Describe eight benchmarks for ethical clinical research.
- Discuss how empirical data illustrate challenges with informed consent.
- Describe the role of researcher-participant interactions in the ethical conduct of research.
Schedule of Activities
12:00-12:05pm – Welcome, Overview, Introductions
12:05-12:55pm – Presentation and Q&A
12:55-1:00pm – Thank You and Feedback Survey
About the Speaker
Stephanie A. Kraft, JD, is an Assistant Professor at the Treuman Katz Center for Pediatric Bioethics and Palliative Care at Seattle Children’s Research Institute and the University of Washington School of Medicine Department of Pediatrics. She conducts conceptual and empirical research on issues related to ethics and equity in the conduct of clinical research and the implementation of emerging biomedical technologies. She is also part of the ITHS Research Bioethics Consultation service. Her primary research interests are in understanding how people make decisions about research participation and improving how research teams demonstrate respect to and build trust with potential participants, especially among marginalized patient populations.
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